Hi, Mary! Ian is adorable! I have a quick question for you. Did you ever have to tape from the center of the NAM to Ian's lip? We are having to do this...and it slips constantly. I actually bought some Mastisol to use on Reid's tape..because it constantly falls off. Reid spits up so much...the tape becomes saturated and then poof...off it goes. I am glad to see you are having results with the NAM! I hope we have the same luck. I am pretty overwhelmed right now. Reid is not sleeping well...up at least every 2 hours around the clock. It's difficult while trying to juggle a 3 year old besides. We did get the Medela feeder and that seems to be working well. So happy though to see Ian doing so well. Has the NAM bothered him much....or is it more like a part of him since he had it from so little on??? Sorry to write a book...I guess I should have just e mailed you!!!! : ) Have a great day!
Surgery Advice....hmmmmm??? That is a hard question.
Well, the biggest thing is to STAY on top of the pain. Make sure the nurses do it at the hospital too. Don't wait until Ian is fussy and then give pain meds, do it around the clock for at least the first 2-3 days. Then, you can start tapering off.
The meds made Adalynn sick...she didn't want to eat. At first we attributed it to being in so much pain, but then figured out that she had a nauseated stomach. She went 6 days only taking about 9 oz a day after her palate surgery. Once we stopped the codeine and just did regular Tylenol, she was a different person.
Good luck, takes LOTS of pictures now. You WILL miss his "first" face.
Hi, My name is monica, i'm from Italy and my son, Elia, is 13 months old. Elia was born with a bilater complete cleft lip and palate, and I can't look at your beautiful Ian without thinking at Elia. Elia had to wear the same NAM but, I can see on Ian's cheeks something to protect them; can you tell me the name of the product. In my hospital nobody knew how to help us to save his skin, that was very damaged. Now Elia is well, he has had his first surgery, but I'd like to know the name of that product to tell my doctor, so that someone else can be halped. thank you so much for the help and for the blog that helped me and my housband to not feel alone. We decided to do the same, so if You like WWW.zioelia.blogspot.com I beg your pardon for my poor english, give a hug to Ian from us
5 comments:
He is so cute!!! He's looking more like a perfect blend of you two.
He is so adorable. I love this time in baby's lives; when they are figuring everything out! You've got a good one.
Hi, Mary! Ian is adorable! I have a quick question for you. Did you ever have to tape from the center of the NAM to Ian's lip? We are having to do this...and it slips constantly. I actually bought some Mastisol to use on Reid's tape..because it constantly falls off. Reid spits up so much...the tape becomes saturated and then poof...off it goes. I am glad to see you are having results with the NAM! I hope we have the same luck. I am pretty overwhelmed right now. Reid is not sleeping well...up at least every 2 hours around the clock. It's difficult while trying to juggle a 3 year old besides. We did get the Medela feeder and that seems to be working well. So happy though to see Ian doing so well. Has the NAM bothered him much....or is it more like a part of him since he had it from so little on??? Sorry to write a book...I guess I should have just e mailed you!!!! : ) Have a great day!
Janeen
Surgery Advice....hmmmmm??? That is a hard question.
Well, the biggest thing is to STAY on top of the pain. Make sure the nurses do it at the hospital too. Don't wait until Ian is fussy and then give pain meds, do it around the clock for at least the first 2-3 days. Then, you can start tapering off.
The meds made Adalynn sick...she didn't want to eat. At first we attributed it to being in so much pain, but then figured out that she had a nauseated stomach. She went 6 days only taking about 9 oz a day after her palate surgery. Once we stopped the codeine and just did regular Tylenol, she was a different person.
Good luck, takes LOTS of pictures now. You WILL miss his "first" face.
Hi, My name is monica, i'm from Italy and my son, Elia, is 13 months old. Elia was born with a bilater complete cleft lip and palate, and I can't look at your beautiful Ian without thinking at Elia. Elia had to wear the same NAM but, I can see on Ian's cheeks something to protect them; can you tell me the name of the product. In my hospital nobody knew how to help us to save his skin, that was very damaged. Now Elia is well, he has had his first surgery, but I'd like to know the name of that product to tell my doctor, so that someone else can be halped.
thank you so much for the help and for the blog that helped me and my housband to not feel alone. We decided to do the same, so if You like WWW.zioelia.blogspot.com
I beg your pardon for my poor english, give a hug to Ian from us
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