Wednesday, January 30, 2008

Life without passie

Yesterday at CHOA went well. We first went to the blood disorders and cancer center for Ian to have more blood work done. My mom held him while the nurse drew blood because I'm a wimp when it comes to needles and such. Then we all went to see Dr. Granger. He was very pleased to see Ian actually wearing the NAM. After some adjustments he was done with us. A nurse measured Ian: 12 lbs., 5 oz. and 23 5/8 inches long. Our boy is growing! He has been having trouble not being able to use the passie. He's gotten used to it helping him fall asleep and now all he has are his fingers. They do the trick sometimes, but they're not always what he wants. The past few days have been a little rough for him. He's been fussier and has become a little hoarse in the process. He's a trooper though.


The Ski's said...

I am so glad to have found your site. Ian is absolutely adorable. We have a son, Reid, who was born on Nov. 3 with a complete bilateral cleft lip and palate as well. We are also using a NAM device...but it is all new to us. We have just started the process. Reid had it put in place on Monday. I can completely understand about the pacifier...we are also dealing with these struggles. Reid is a big finger sucker...but can not get his hand in his mouth to be comfortable. He has not been sleeping or eating well. It has been a rough few days for us as well. Any advice you have? I know you have been using the NAM for awhile now. I welcome you to visit our site. Ian reminds me so much of Reid. Ian is absolutely adorable. I would love to network with you. The more help I have, the better I feel. It's nice to know that there are others out there who are also experiencing the same journey. I hope to talk with you sometime. You have a beautiful family. Many, many blessings...and I hope Ian is feeling better soon. Take care!


Jessica (DJ's Cousin!) said...

I think it's incredible that you're doing this blog and actually started to cry when I read the comment by Janeen. Think of how many people little Ian will help because of your testimony!!!

I think about meeting him all the time and look forward to seeing him again!!