He is taking several different medicines, including Tylenol with codeine, Amicar, and an anti-biotic. The Amicar is for his hemophilia to help the blood clot. We have been giving the Tylenol every four hours, but we have started to cut back on how much we give. We're down to 2mL instead of 3mL.
He is sleeping about the same as he did before surgery; goes to bed around 8 and sleeps until 7 the next morning. We have woken him the first few nights home to give him pain medicine and some food. However, he was more interested in sleeping.
He's up and playing just like normal, except he has his "welcome sleeves" prohibiting him from playing exactly how he'd like. We took the advice of one of the cleft parents and put some leg warmers on the sleeves. This keeps him from scratching his face with the Velcro. No tummy-time as of yet, but that's just because we're nervous that he could bump his mouth. He has no restrictions from the doctor as far as activity.
Eating has been the most difficult. He wants eating to be as easy as it was with the NAM. Before surgery he was taking a 6-7 oz. bottle every 3-4 hours. Now he is taking, on average, 2 oz. every 2-3 hours. He doesn't seem to be as interested in food as before. I know it is very different without the NAM, but he is at least taking in some food. He doesn't act like he is in pain during feedings, but that may be part of the reason for eating so much less.
He's started smiling, or at least trying to. His lip is still very tight and will continue to be for a while. The tape, which is used to take some pressure off of the lip, will stay on until it falls off on its own. Little Ian still has a long way to go, so please continue to keep him in your prayers. We appreciate the support we have received so far. We have definitely felt the prayers!
5 comments:
The site looks GREAT, and so does the little guy! What a trooper! (and what a sleeper!) I am inspired by your strength! I only hope we have such great strength when it is Reid's turn. I am sure I will be turning to you for feeding advice when we get there! Keep doing what you are doing! Ian is lucky to have such a great family. BLessings to you all!
You guys are so blessed. Congrats on an "uneventful" recovery thus far. Like before, you've got a gorgeous little guy there. We can't wait to see and hear about his progress!
Allison, Abby, Nick and Ella
I was doing my weekly check ins on all our cleft friends and was so relieved to hear things had gone so well with Ian's surgery. It was on the calendar and you've been in my thoughts and prayers.
He looks wonderful!
Glad to hear things are going well for little Ian and the rest of you. One thing that we have done after every surgery is to go to our local pharmacy and get some more steri-strips and put them on top of the ones already there for extra reinforcment. We found that through feedings the original strips would get wet and start to peel off. We did this to try to maximize the amount of time the wound would have to heal wihtout the help of the steri-strips. Just a thought...
Glad things are continuing to go well. Don't you just want to stare at his new face all the time? Amazed at the transformation?
But at the same time missing his "first face"....
your posts/photos bring back soooo many memories.
Codeine caused Adalynn's tummy to be upset. She didn't return to eating normally until she was completely off it. We switched to regular Tylenol as soon as we could (about day 2). That may help.
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