He is taking several different medicines, including Tylenol with codeine, Amicar, and an anti-biotic. The Amicar is for his hemophilia to help the blood clot. We have been giving the Tylenol every four hours, but we have started to cut back on how much we give. We're down to 2mL instead of 3mL.
He is sleeping about the same as he did before surgery; goes to bed around 8 and sleeps until 7 the next morning. We have woken him the first few nights home to give him pain medicine and some food. However, he was more interested in sleeping.
He's up and playing just like normal, except he has his "welcome sleeves" prohibiting him from playing exactly how he'd like. We took the advice of one of the cleft parents and put some leg warmers on the sleeves. This keeps him from scratching his face with the Velcro. No tummy-time as of yet, but that's just because we're nervous that he could bump his mouth. He has no restrictions from the doctor as far as activity.
Eating has been the most difficult. He wants eating to be as easy as it was with the NAM. Before surgery he was taking a 6-7 oz. bottle every 3-4 hours. Now he is taking, on average, 2 oz. every 2-3 hours. He doesn't seem to be as interested in food as before. I know it is very different without the NAM, but he is at least taking in some food. He doesn't act like he is in pain during feedings, but that may be part of the reason for eating so much less.
He's started smiling, or at least trying to. His lip is still very tight and will continue to be for a while. The tape, which is used to take some pressure off of the lip, will stay on until it falls off on its own.
Little Ian still has a long way to go, so please continue to keep him in your prayers. We appreciate the support we have received so far. We have definitely felt the prayers!