A nurse from Scottish Rite called today to give us some of the test results. The von Willebrand factor and factor 8 were both low. We already knew about VWF, which is why he has been taking the Amicar. A low level of factor 8 is linked to hemophilia. I know very little about hemophilia, but I know it's more serious than von Willebrand's. Since the levels are only slightly low, we are scheduled to go back to the cancer and blood disorders clinic Tuesday for more blood work. The nurse stressed that factor 8 was low by a very small margin, but they would rather be safe. If he does have hemophilia, he will be given another type of treatment before his surgeries. This is all very scary, but at least we are finding out now. It could have been a lot worse had we gone into surgery unprepared.
http://www.choa.org//default.aspx?id=416
http://www.choa.org//default.aspx?id=305
2 comments:
I'm glad you are starting to get some answers. Good luck with more tests, you'll be in our prayers!
Give baby a kiss for me. I hope everything goes okay at the doctor tomorrow. Love you!!
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